Adult Congenital and Cardiovascular Genetics Center

UMP - Adult Congenital and Cardiovascular Genetics Center

Clinic Overview

The Adult Congenital and Cardiovascular Genetics Center provides a unique approach to cardiac care. The program features the combined experience of adult and pediatric cardiologists, a nurse coordinator and a genetic counselor, providing comprehensive care for complex heart disease. This allows us to care for you through all stages of your life.

Some individuals with congenital heart disease may have complex health care issues that require coordination of care with several medical or surgical specialists. Our collaborative care model features an extensive team of professionals providing coordinated care for complex medical problems.

Whether you have had symptoms or problems associated with your heart disease or have merely forgotten your diagnosis and its initial treatment, we believe it is important to learn more about your condition and the need for continued care. We are available to assess your current cardiac needs, discuss appropriate follow up, and provide you with complete cardiology care or work with your own physician or cardiologist. 

Learn more about our physicians' cardiovascular and genetics expertise.

Conditions we treat

We provide care for congenital heart disease as well as genetic conditions affecting the heart including (but not limited to) the following:

  • Congenital Heart Defects – atrial septal defect (ASD), coarctation of the aorta, congenital valvular disease, Ebstein anomaly, patent ductus arterioses (PDA), single ventricle, tetralogy of Fallot, transposition of the great arteries, ventricular septal defects (VSD) 
  • Genetic conditions affecting the heart - Noonan, DiGeorge, Marfan, and Williams syndromes, Trisomy 21 (Down syndrome) 
  • Inherited/familial cardiomyopathies - including those related to muscular dystrophy 
  • Metabolic and storage disorders - Carnitine deficiency, Fabry disease, Pompe disease

Treatments

The clinic provides or facilitates access to the following procedures:

  • cardiovascular examination 
  • advanced echocardiographic and radiologic imaging 
  • diagnostic and interventional catheterization 
  • medical treatment of heart failure 
  • medical treatment of pulmonary hypertension 
  • electrophysiologic studies including: 24 hour Holter exams, event recorders, invasive EP studies and insertion of cardiac pacemakers and defibrillators 
  • congenital cardiac surgery 
  • ventricular assist devices 
  • cardiac transplantation 
  • genetic counseling and testing 
  • management of contraception and high-risk pregnancies
     

A partnership of Fairview and University of Minnesota Physicians

Location Info

Address

University of Minnesota Medical Center, Fairview
Phillips-Wangensteen Building
Third Floor, Clinic 3B
516 Delaware St. SE
Minneapolis, MN 55455

Fairview Southdale Hospital
6405 France Ave. S
Suites W200and W300
Edina, MN 55435


Contact

Appointments
Campus: 612-626-1374
Southdale: 952-836-3770

Questions: 612-625-7152


Hours

  • Campus: Tues
  • Southdale: Thurs
  • noon - 4:30 p.m.
  • 8 a.m. - noon

Our Team

Additional information

The Adult Congenital and Cardiovascular Genetics Center at the University of Minnesota is actively researching the basic science of cardiovascular disease, including the genetics of congenital and inherited heart disease. The purpose of our research is to identify genetic variations associated with congenital heart disease.

Understanding the genetic variations of heart disease may help us better understand the development, inheritance and recurrence of congenital and acquired heart disease. Knowing about variations within specific defects, as well as between different defects, may also impact the survival and long-term outcomes for individuals.

In addition to basic science research, our team is creating an Adult Congenital and Cardiovascular Genetics Registry. The registry will include information about diagnosis, treatments, outcomes and family history. This information will be used to study the clinical outcomes for individuals with specific conditions. Our hope is that additional knowledge about cardiovascular disease will lead to improved outcomes and better quality of life for individuals with congenital heart disease.

History of Congenital Heart Disease
In the first half of the twentieth century, there was little effective therapy for individuals born with complex heart defects. Pioneering efforts to surgically repair congenital heart defects at the University of Minnesota in 1952 revolutionized the field and provided a platform for current treatments.

As therapies for congenital heart disease have continued to advance, life expectancies have also increased. In fact, the number of adults with congenital heart disease is now greater than the number of children with congenital heart disease in the United States. This rapid increase in adults with congenital heart disease has challenged pediatric and adult cardiologists.

In the ACCGC, we feel patient education is important. In addition to knowing the type of heart condition you have, we want you to understand treatment options, important signs and symptoms to watch for, the benefits and side effects of medication and the potential risk to family members. The link below provides you with educational information about specific heart conditions, detailed descriptions of cardiac procedures and surgeries, and helpful tips regarding your health and nutrition.

www.umn-accgc.congenital.org


 
 

Central Scheduling: 612.672.7422

Provider Referrals: 612.672.7000

Administrative Offices: 612.884.0600
 

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