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Leo Fung Center for Congenital Adrenal Hyperplasia (CAH) and Disorders of Sex Development (DSD)
Address:
Riverside East Building
Twelfth Floor
2450 Riverside Ave.
Minneapolis, MN 55454
Phone:
Appointments: 612-365-6777
The Leo Fung Center for Congenital Adrenal Hyperplasia (CAH) and Disorders of Sex Development (DSD) opened in 2005. The center has the distinction of being the first multidisciplinary clinic and research center in the country where specialty providers collaborate in a single clinic location to care for patients who have CAH and DSD. As a group, the Center's providers discuss each patient's condition and uniformly monitor the full range of care.
The Center's multidisciplinary, single-center approach allows for patients to have multiple consultations with providers in a single visit, reducing the number of necessary clinic appointments. The Center's team coordinates treatment and follow-up care with patients and families, primary-care providers and school nursing staff.
Conditions we treat
CAH and DS are rare congenital conditions in which development of chromosomal, gonadal or anatomical sex is atypical. Such conditions include:
- Congenital Adrenal Hyperplasia
- Androgen Insensitivity Syndrome
- 5a-Reductase Deficiency
- Gonadal Dygenesis
- Testosterone Synthesis Defects
- Turner Syndrome
- Sex-Chromosome Mosiacism
- Klinefelter Syndrome
- Micropenis
- Persistent Müllerian duct syndrome
- Complete or Partial Androgen Insensitivity Syndrome
- Complete or Partial Gonadal Dysgenesis
- Leydig Cell Hypoplasia
- XX Testicular DSD
- Ovotesticular DSD
Physicians:
-
Berg, Dianne R, Ph.D., L.P.
- Psychologist
-
Bockting, Walter O, Ph.D., L.P.
- Psychologist
-
Boisclair-Fahey, Anne, D.N.P., R.N., C.P.N.P.
- Pediatric Nurse Practitioner
-
Lewis, Jane M, M.D.
- Pediatric Urologist
-
Sarafoglou, Kyriakie M, MD
- Pediatric Endocrinologist
-
Terrell, Carrie Ann, MD
- Obstetrician/Gynecologist
A partnership of Fairview and University of Minnesota Physicians
LOCATION MAP:
Leo Fung Center for Congenital Adrenal Hyperplasia (CAH) and Disorders of Sex Development (DSD)
Riverside East Building
Twelfth Floor
2450 Riverside Ave.
Minneapolis, MN 55454
What to expect
Initial Patient Visit
A typical visit may include one-on-one consultations with the following specialists:
- Pediatric Endocrinologist/Geneticist for evaluation and/or diagnosis of disorder; monitoring of disease control; growth, pubertal development and other medical concerns; medical information about the disorder; and discussion of all treatment options
- Genetic Counselor for family pedigree information; genetic counseling; DNA testing; make plans to review and discuss the results at the next visit.
- Psychologist (who specializes in DSD) to assess the patient's and family's ability to cope with issues associated with CAH and DHD, including delayed or advanced puberty; gender issues; medical and surgical treatment options
- Public Health Nurse/Follow-up Care Specialist for information on local resources and help obtaining school-and health-related special services.
- Nurse Coordinator for explanation and initiation of the Emergency Medical Plan (including web based plan for physicians at other hospitals in case of emergency) and obtaining patient and parent materials and information about the disorder
- Pediatric Urology Surgeon (if surgery is a consideration) for information on the surgical procedures and outcome expectations
- OB-GYN for evaluation of infertility, high-risk pregnancy, and prenatal care and therapy
About two weeks after the initial visit, patients and families receive a comprehensive report that includes recommendations from all of the specialists who evaluated the patient at the Center. During return and follow-up visits, patients and families meet only with the members of the team that address ongoing medical concerns. Due to the multifactorial nature of CAH and DSD, varying health issues might arise at different stages of a patient's life, requiring the expertise of one of our specialists. The team structure of our Center ensures that the specialist will already be familiar with the patient's ongoing care.